Yes. My baby has torticollis. I found out before she turned 1 month.
I was scared to death at that time because I have no knowledge at all.
Well, I did not have a good experience with pediatrician. honestly they are not in the field. My pediatrician scared me that surgery is required, etc.
(It was totally not helpful)
Instinct told me to go to KK where they have the experise. I am glad I did.
I realized that it is common to some infants (my pediatrician said it is uncommon...) KK gave me the assurances that it can be treated. I saw the senior surgeon(any level also can) since I am going as a private patient. But - still cheaper than pediatrician or their assigned specialist doctor. He did a detailed ultra-scan on my baby and before concluded what level of torticollis. The treatment - he assigned my baby to physio. I'm not sure if you are the working mother which I did. No one is as good as the physio on how to do it. The therapist actually assess my baby and then teach me & my caregiver on what are the exercises suitable at each stage of her torticollis. Every time, she will assess and teach us the suitable stretching with my baby. My baby is a girl so I was so scared she grow up 'titled'.
By the way, it is very important to start the exercise treatment very quickly and early. By 12 months, a surgery may be required to ease the strained muscles. It will also affect the growth of their face, ie. can be one side bigger or smaller than another one. So KK surgeon recommends physio therapy.
My baby recovers well by 6 months. Based on the scheduled appointments, I see the surgeon and he assess her. Slowly from a 3 months interval appointment, it changed to 6 months. About 18 months later, she is officially off the 'radar' screen and the surgeon discharged her from any visit. Today- she is a pretty cute little fellow.
Not many people knows about this. At that time, I really read alot on this and I did not have any support group.
Luckily I worked in a medical company and I also received some information.
PM me if you need support