You are right Angelmum. Even with normal amnio test results, it does not guarantee a normal baby. The specialist who did the detailed scans for me just didnt get to see the baby's hands. If I'd knew that my baby was born with multiple abnomalities I would have terminate the pregnancy. It would be cruel and sad but at least he wouldnt have to suffer.
I've given up asking why because there is simply no point. Now the only questions I want to ask is how I can help my son. On the recent trip back to Singapore, we made so many appointments with the doctors at KK hospital. We were rushing up down left right the entire 2 days because our numerous appointments were one after the other. We dont even have time to eat! So many doctors to see because he has so many problems.
My 1st son is turning 6 years old (he's the boy riding bicycle in my avator) and he studies in an international school here in Dubai. My 2nd daughter is going to be 2 years next month. They are the sunshine of my life.
I'm glad I found this forum because I tried looking for other parents with CdLS kids in Singapore but couldnt find. At least I can relate to the special parents in this forum, whom are a source of inspiration and encouragement for me.