My boy is on tube feeding since early this year when he was warded in hospital for bronchities. He was drinking from a bottle since birth and had been following up with the speech therapist at Kandang Kerbau Hospital until early this year when they did a VFS and showed that his swallowing is weak -at risk of aspiration. The ST immediately stopped us from bottle feeding and put him on NG tube since then. My hubby and I were heart broken when we have to tube feed him.
Recently, one of my boy's doctors suggested to us to consider the PEG. However, we are not ready to do so as I understand that it will be an irreversible thing once you start the PEG esp for children with CP. We feel that our boy's swallowing has gradually improved since we brought him to see Vasu and also we have been doing oral motor exercises for him everyday. We also have been feeding him a few teaspoon of soft puree everyday to stimulate his senses and we do see that he can swallow without any cough or fever afterthat. His drooling has also greatly reduced. The 2nd VFS done in May this year did show that his swallowing has improved from the 1st done early this year. I am also planning to try the Vitalstim therapy to further help my boy's swallowing.
Could you share with me more about this PEG as I want to have more knowledge about it?