Hi angelmum and epicurean,
you two are really strong women! I need advice and all the moral support!
My 2 week old baby was born with no heartbeat. After resusitation and days in NICU, we were told that she is diagnosed with cerebral palsy due to damage in the brain. According to the MRI scan, at best, she would be wheel chair bound.
The facts are traumatic for me and family. As of now, we are still trying to cope with the news... i am actively trying to get a domestic helper in to ease the load.
How did you cope? If your baby on tube feeding? Does he need suctioning since they are not able to cope with normal swallowing?