Recent content by epicurean

Sorry, my friend has already given away the stroller :(

Thanks for all your prayers. Raiyan's family decided to let him go yesterday morning after blood had ceased to flow to his brain. He had been unconscious since his admission into PICU and doctors could not detect any response to external stimuli. His brain stem had also deteriorated in terms...

Please pray for Mohammad Raiyan who's currently unconscious in PICU (NUH). He's 5 this year ... in 2008, he caught the virulent strain of HFMD and suffered brain damage. His story is covered in the following article: Media Articles::National University Hospital He lost consciousness a...

Would like to share 2 articles from the Today newspapers about stem cell therapy. The 2nd article is a forum letter in response to the 1st piece of news. 1st article: Taken from TODAYonline | World | Baby dies after injection in the brain Baby dies after injection in the brain 05:55...

Hi quvette, I'm sorry I can't offer you the direct answers that you seek. What I can share is that if my boy (now 2.5 years old), who has severe CP in terms of severe physical (including visual) & cognitive impairment (he's very low-functioning, high dependency), recognises & realises we're his...

Hi quvette, Welcome to the forum ... Just to address your questions about early intervention programmes ... referrals to hospital rehab centre(s) are usually for 'ad hoc' issues or to act as a transitory point for the child (waiting for placement in special schools) to receive therapy. My son...

Hi Ashbaby, My husband's colleague's daughter has cleft lip & palate. She has undergone surgery and I think she's around 2 years old now. He's also active in Operation Smile (Spore chapter).

MaLee56, My friend whose gal was on the ketogenic diet has these comments to share: Background: Her gal was placed on the diet when she was 8 months old to control her seizures. Was on the diet for a year plus. Her parents tried out the diet coz at that point in time, no med could really...

Hi MaLee56, Personally, my experience with NUH has been largely positive so far. With the exception of 2 docs (in the general ward & paed general medicine), I find the docs, nurses, support & admin staff to be compassionate, professional, driven & meticulous. Coz of my boy's multiple issues...

Hi MaLee56, Welcome to the forum and I'm very sorry to hear about your girl's condition & challenges. I don't know about recorded cases of PDCD at NUH but my son's initial diagnosis was in-born error of metabolism and we were advised to transfer him to PICU at NUH and see Dr Denise Goh &...

Hi jxmom, I understand how disheartening & demoralising it can be that the seizure meds & changing of meds have not been working well for your girl. Would like to share my friends' experience ... we became friends when our children were admitted into PICU around the same time and their girl &...

:tlaugh: Really? I usually get them from Kiddy Palace or Robinsons.

Hi Starbat11, The medicine bottles are extremely miniature versions of the milk bottles with volume ranging from 10 to 15ml, precisely to minimise the possibility of the child not finishing the med & to avoid wastage (eg. med coating a regular milk bottle). Coz my boy takes his seizure med...

Hi Starbat11, What works for my son is his medicine bottle (either Nuby or Munchkin brand). It's like a miniature milk bottle so I mix the med with his usual milk and he takes the med bottle first then followed by his regular feed.

Hi jxmon, Welcome to the forum :) My boy (now 2 years old) started having seizures at 18th hour of life and it worsened to the point of 5-6 seizures an hour. He was on a cocktail of seizure meds (sorry I can't remember the names of the meds now) and sedated to control the seizures. When he...