angelman syndrome

I am posting this, hopefully to create awareness on what would hurt us. A friend who knew you're a special needs parent do not show any consideration, empathy for another human being and basic understanding. One of my Angelman friends was featured in MediaCorp Hearts and Hugs show 爱心72小时...

Rare diseases are long-standing, life threatening, progressively disabling conditions that affect a small percentage of population (1 in 2,500 individuals) and require multi-disciplinary care. One rare disease may affect only a handful of patients in one demographic (eg. In the EU) and another...

Extracted and posting here. What disabled people want: A little kindness Disabled commuters are to get fare concessions on public transport, the Government said this week. Details are to be worked out, but Nicholas Aw, president of the Disabled People's Association, wants them to pay...

Have not been posting here for quite some time. Just watched MediaCorp "The Joy Truck". This first episode focused on 3 Rare Genetic kids. 1) Grace Tan 陈思颖 5岁的思颖患有丙酮酸脱氢酶复合物缺乏症，身体无法使力。其他病症包括行走困难，发育缓慢和癫痫。思颖是部分因生酮飲食(是一个高脂、低碳水化合物和适当蛋白质的饮食)而获益的成功例子之一。5-year old Grace suffers from Pyruvate...

Financial Assistance List of help from govt bodies, mainly for those low income. Some cap at $500/capita, some much lower.

TODAYonline | Singapore | Special attention for Sped schools 1) S$300 monthly subsidy for their children enrolled in EIPIC. The programme provides social, educational and therapy services for kids up to six years of age. 2) New CPF scheme, called the Special Needs Savings Scheme (SNSS) to...

This thread is a summary of http://www.mummysg.com/forums/f97/introduction-childs-medical-condition-chat-14805/ - for new members who are parenting child with special needs to find us/kaki easily. "Special needs" are commonly defined by what a child can't do -- by milestones unmet, foods...

This thread provides a more detailed introduction ... a bit different from 'Lounge Area - Introduce Yourself'. Basically to let other special needs parents know you and your child's condition better. To view Individual Members' Introduction: Click shortcut...

Autism Spectrum Disorder (ASD) Autism Spectrum Disorder The fastest growing diagnosis within the disability of Pervasive Developmental Disorders is Autism Spectrum Disorder. Children diagnosed with Autism Spectrum Disorder are from all socioeconomic groups, as well as cultural, racial, and...

This thread contains different postings with different tips. Contributed by Rae Explora Learning Company, was started by parents of a child with developmental delay, who had faced much frustration at the lack of awareness and minimal support available within the Singapore school system. Our...