Have not been posting here for quite some time.
Just watched MediaCorp "The Joy Truck". This first episode focused on 3 Rare Genetic kids.
1) Grace Tan 陈思颖
5岁的思颖患有丙酮酸脱氢酶复合物缺乏症,身体无法使力。其他病症包括行走困难,发育缓慢和癫痫。思颖是部分因生酮飲食(是一个高脂、低碳水化合物和适当蛋白质的饮食)而获益的成功例子之一。5-year old Grace suffers from Pyruvate...
Hi all wonderful parents
My 5 month old son is diagnosed with Cornelia Lange Syndrome (CdLS). I have written an introduction in another thread, let me post it here:
My 3rd child Taeyon was born premature at 35 weeks. He was born in Dubai UAE as our family has been living here for the past...
Dear all
I went to speech therapist at NUH for my son's feeding issue, he wants to latch on for milk bt reject bottle feed n spoon feed. So i request to see speech therapist
But during my first appt, I was very disappted, instead of giving me hope to help stimulate my son for bottle n solid...
Hi mummies,
am keen to know, do you feed anything else besides milk through the tube?
am afraid my bb now 18months may be iron-deficient cos still only on milk only diet.
btw, how can you tell if your baby is anaemic?
This thread provides a more detailed introduction ... a bit different from 'Lounge Area - Introduce Yourself'. Basically to let other special needs parents know you and your child's condition better.
To view Individual Members' Introduction:
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