Rare diseases are long-standing, life threatening, progressively disabling conditions that affect a small percentage of population (1 in 2,500 individuals) and require multi-disciplinary care. One rare disease may affect only a handful of patients in one demographic (eg. In the EU) and another...
This thread provides a more detailed introduction ... a bit different from 'Lounge Area - Introduce Yourself'. Basically to let other special needs parents know you and your child's condition better.
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Contributed by Rae
Explora Learning Company, was started by parents of a child with developmental delay, who had faced much frustration at the lack of awareness and minimal support available within the Singapore school system. Our...