A rare case

[silentmoods]

Hi, I'm new to this forum and a mum to a special child with chromosome 4p deletion. It seems that she is the only case here. She is 8 but very small in size. Only weighs about 15kgs.

I've been trying to find some good private OT for her. Any advise?

 

[simiko]

my bb was diganoise wif this as well. It's called Wolf Hirschhorn Syndrome. My bb has her deletion at 16.1 which the gentics say is a vv big deletion.. how big was ur bb deletion?